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Thanks DanL
I am lucky in one way- I have an identical twin sister that is willing to donate if I need a transplant. I had a phone conference with Dr. in Florida today who recommended that both my sister and I collect and freeze stem cells for the future. I have a mild form he says that may not need a transplant but we could be prepared. I look forward to Mayo clinic to see what they say. My hematologist has not been very straight forward with information. He told me not to look anything up as there were some bad forms of sideroblastic anemia and mine wasn't one of them. That is all the information he gave. Today I was to fax my CBC results in and then have a phone conference. Turns out he and his nurse are on vacation until June 5th. His partner agreed to look at the results and call me but I still have not heard from him. Very disappointing.
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