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Hi Leeslay,
I was on 50 mg/day of Prednisone and weighed 100 lbs at the time. (I think it is dosed by weight.) I was weaned off within a month. Make sure that they are giving you the correct dosage for your weight.
With regards to the MDS/AA combo diagnosis...
My understanding is that MDS, AA, and PNH are overlapping diseases. So, it is possible to have characteristics of all 3. For me, I call myself AA/MDS because I have one expert who says it is definitely AA, 3 that say it is MDS, and 1 that says it is a unique combination of both. I don't have chromosonal abnormalities but have dysplasia and fibrosis in a patchy hypocellular marrow.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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