[susansr]

I am very troubled. At 6 months post ATG, docs undecided what to do. MY platelets reached a plateau of 24-26,000, after 3 months, and that's where they remain. I require a RBC tx every 2-3 months to maintain an healthy Hgb and Hct count.

Now its ONE year post horse ATG, and nothing has changed. They say since I don't need platelet txs, its ok living with platelets at this level. But I don't understand why I cannot maintain a normal RBC count. Tests show I do make enough Baby RBCS, but they die prematurely. Why? I just don't know where to go from here or just sit tight and continue "watch&wait".

Thinking of going to Cleveland Clinic for 2nd opinion. Any being treated there?
Any comments?

Would so very much appreciate you all to weigh in!! Thanks. Susan.