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Sounds like a second opinion would be a good idea, Susan. I'm all for not rushing things, but if you're still having to be transfused at 1 year, that does not qualify as a satisfactory response. Things may improve, but the odds are not in your favor, so I'd be exploring other options at this point.
Of course it all depends on what your other options are. To put things into perspective, a lot of MDSers live with those kind of counts. It's doable, so I can see where they're coming from, but as an AAer, you may have a chance at better results with a second round of ATG. What are your transplant options?
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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