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Old Wed Jul 13, 2011, 02:38 AM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Dhruba,

Your wife's counts are very impressive at Day 119! It was many, many months for me before my platelets got to 50,000.

Regarding the white patches in your wife's mouth, these are almost certainly GVHD. It is important to understand that GVHD can appear at any time following transplant. When it occurs in the first three months after transplant, it is called "acute" and thereafter it is called "chronic," regardless of how severe it might be. Since it is already more than 100 days since your wife's transplant, the white patches you see in her mouth are likely to be chronic GVHD. I had these patches in my mouth for a long time after my transplant. Ask the doctor about an oral rinse to control the spread and irritation that these patches may cause. And watch carefully for other signs of GVHD, particularly in the form of rashes on your wife's skin. She is taking a relatively small dose of cyclosporine at this point so if new symptoms occur it might be necessary to increase her dosage temporarily.

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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