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Old Thu Jul 17, 2014, 02:34 PM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
MDS

Hi usaf1125,

Thanks for your reply.

Yes, no doubt MDS is a strange disease.

Doctor is ok with premedicating with Tylenol, but no antihistamine like Benadryl. Could you tell me what is hydrocortisone used for? I also think Tylenol reduces platelet count though that may happen with prolonged use.

I have one more questions for you - has your transfusion requirement increased over the years or have you been on a similar frequency for last 10 years? I am always worried for my mother that her disease will progress and she will need even higher frequency of transfusions. No treatment has worked so far.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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