Thread: Tired
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Old Tue Jun 19, 2018, 08:14 PM
Susan Susan is offline
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Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
Tired

Hi GoodDay, I'm happy for you, you sound like you're doing well! Yes, age and health are important factors, and it's each person's choice to have the treatment they want.

I'll take a look at the study. I believe a mini means less toxic pre-conditioning, it's been a while since I looked into it. I known several people who had that and all but two survived. Not sure why but one add severe gvhd even though it was a reduced toxicity trial at the NIH.

When you need to work and you're putting your life in danger going up on a ladder and so on, you need a good solution. I feel better on Soliris but not 100%. Be well.
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AA/PNH Dx 1998, Warfarin, Soliris
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