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Laura, I have just noticed your posts, and you seem to be in a similar situation to us. Paul was diagnosed, seemingly as a well man, at age 61 in July 2012 and the last few months have been a rollercoaster ride (to say the least) of emotions and doctors visits. Like your hubby, Paul is to head down the transplant path, sooner rather than later if they can find a MUD (sibblings not a match).
Wishing you both all the very best for the approaching transplant and will watch for your posts with great interest for progress.
Thoughts are with you.
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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