[MagicBob]

Originally Posted by PattiDean

Dean has been on Dacogen for almost a year, and was doing well, needed transfusions now and then and his WBC was always terrible, but we were able to get out to the movies, dinner and week end getaways. In May his counts began to fall even more and not recover as the weeks went on. He became extremely weak and short of breathe.

The end of May Dean had his last treatment of Dacogen. He was suppose to have his usual cycle (five days every four weeks) the end of June, but all his counts were very low, so no Dacogen. His oncologist postponed treatment for a week. The following week, beginning of July, Dean's counts were still very low, so the oncologist said no Dacogen, but ordered a BMB.

Last Friday Dean had to receive transfusions of blood and platelets. Yesterday we received the first results of his BMB, his blasts are 15%, they had gone down to 5% when he began Dacogen.

Now in addition to MDS, the biopsy shows Dean has severe Myelofibrosis. Dean is being referred to Dr. List at Moffitt, as soon as he can get an appointment. We are lucky to be living so close to the center.

Dean has been a trooper, so much braver than I could be, but last night he began to cry and told me how afraid he is. It was so hard to see him like this. I know in my heart it doesn't look good, but I am trying to keep giving Dean hope. We are alone, no siblings or children, not having a family to turn to is so hard.

Patti, my wife and I are with you guys, and hopefully your appointment with Dr. Alan List will happen soon. I am sure he will have some type of medication or therapies to treat Myelofibrosis.

We can't replace siblings or children, however we are here as your MDS family, and will continue to pray for you both that God gives you the Hope and Strength to face each day.
MagicBob (Dru and Bob)