PattiDean.....so very sorry you are facing another hurdle.....when my husband's spleen became enlarged with the myelofibrosis....we did radiation and it did shrink the spleen and he was more comfortable...it was done 3X per week....as you know this is not a unique diagnosis along with MDS.....there is a test for the JAK2 Gene as well as a new drug JAKAFI...am not sure if it is used when there is a combination of the 2 diseases....
Also Patti....even some that do have family, they can cause more stress than comfort....
Kate
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