[PattiDean]

Thank you Kate and Birgitta.

This afternoon Dean went for his bi weekly labs, we were told he doesn't have the JAK2 mutation. Is that good or bad?

We also received a call from Moffitt. Dean has an appointment this Tuesday with Dr. Lancet.

Dean is not receiving any treatment, his last Dacogen cycle was the end of May, nothing since then. He has received three weekly injections of Procrit this month, and 2 units of PRBC and 6 units of platelets on Friday. Monday we get the final results of his BMB, the chromosome report. When Dean found out he had MDS last July 16 of 20 chromosomes were abnormal. While on Dacogen his last BMB showed there were no abnormalities.

For now, Dean's spleen is fine, but he is extremely weak and short of breath.

Today his blood counts were:

WBC 1.9
ANC 0.5
RBC 2.97
Hgb 9.7
PLT 21

Greatly improved since last week.

I didn't realize how many MDS patients may develop Myelofibrosis. We are hoping that there are options for Dean, we wants to keep on fighting.

Thank you so much Kate and Birgitta for answering my questions, your kindness and support. We are so afraid since finding out the results of the lastest BMB.

Hugs, love, faith, hope and prayers. Patti and Dean