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Hi Ningwa - Every MDS patient is different.
The lifespans are only averages, and are calculated over many people. They scared me at first, but I have had MDS for around 7 years now, and have not had to have any treatment except for 4-weekly intravenous globulins which help my immune system. There are several different types of MDS and some patients live for many years. Don't rush to have drug treatment unless your specialist recommends it. Hong Kong is known for world-class specialists so trust your haematologist/oncologist.
As far as diet is concerned, of course as healthy a diet as you can manage makes sense. Alcohol is not recommended for MDS patients. Smoking is introducing more carcinogens to your body so not wise either. Eat plenty of fresh vegetables and fruits - well-washed - and drink plenty of water. Try to get some exercise every day. Vitamins D3 and B12 are important for platelet and folate levels. Ask your GP to have these levels checked.
Keep posting - we'll be watching out for you!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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