[ixmnrs]

Hello everyone,

A little background...

My son was diagnosed with aplastic anemia after a severe nosebleed while he was fighting a viral infection. Since then, his pancytopenia has been persistent, WBC around 2, Platelets around 50, ANC between 500 and 1000 with Hg around 110-120 (Canadian numbers). Cellularity on BMB was around 20%. His counts have been pretty stable since; no transfusions, no treatments and only one more severe nosebleed a month after. His diagnosis is moderate Aplastic Anemia. A whole battery of blood tests and genetic tests (showed slightly short telomeres) have been negative, so no 'cause' yet but some results still pending.

Nonetheless they only arranged for HLA Typing (1 sister and us) 1.5 months later (Wasn't considered urgent as no treatment was required so I imagine it was somewhat pushed back) and it has been 4+ weeks now without an result. Is that somewhat par for the course when it comes to this type of HLA Typing? What were some of your experiences? The wait is just killing us, even though we are thankful things have been stable without treatment, especially reading the stories that most of you have endured. Thank you for sharing your experiences and knowledge!