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I assume that's where we had to send our tests to as well as they did say British Columbia and I think they're the only lab that does it. Telemore testing took a while (at least a month) and I'm not still sure they have all the results of the testing. Probably they sent for the basic procedure first, and then decided they needed a more detailed testing later. Nonetheless, we just know that they are a little short, but not DKC short if that makes sense. He's had a whole battery of tests to rule out a lot of congenital conditions which so far has been negative.
My son is 14. So far, he has been stable and to look at him, it's hard to believe that AA is even a possibility, but we're thankful. The scary part is the waiting, the uncertainty and the fact that our doctor has essentially said that in his experience, 2/3 of patients progress to SAA.
Thanks for your reply and I hope Eric is doing well.
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