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Old Sun Jan 1, 2012, 04:40 AM
Susan Susan is offline
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Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
Agree with Marlene

I have AA and PNH and had food poisoning 2 years ago, taking my GFR down to 15. Was lucky to avoid dialysis. Had massive hemolysis from the infection and fever. Anyway was given IV fluids plus drank as much liquid as possible inpatient for 8 days. GFR and creatinine gradually rose to nearly normal.

I get a renal panel every 2 weeks. I definitely notice if I'm not drinking enough fluids ( coffee doesn't count:-)) my GFR falls, sometimes to 46. Creatinine goes up a bit, not bad.

Kidney issues are my main cercern if and when I do ATG/cyclo. I just hope I'm not kicked off of treatment mid way from kidney damage. I did read somewhere about meds that can be taken to help prevent damage, eg, worsing Chronic Kidney Disease. Will be researching cyclo and kidney issues before treatment. Counts still not too bad for now.
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AA/PNH Dx 1998, Warfarin, Soliris
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