Just diagnosed!
My hematologist told me today that I have MDS 5q syndrome with 5% blasts. Hemoglobin 8.6 which is down from two weeks ago. The plan is to redo CBC in two weeks but she thinks I will need a blood transfusion in a month. After second or third transfusion will put me on Revlimid 10mg.
I have been very calm the since the Bone Marrow test but today, on the way home, it just hit me hard. The sudden realization that I will be at the mercy of this progressive cancer generated so many different feelings I just broke down and cried.
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My name is Jane and I was diagnosed with Myelodysplastic Syndrome on New Years Eve.
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