There is so much to learn when you are first diagnosed with MDS it's almost overwhelming. However researching for yourself is essential and knowledge is power. This website is an excellent start.
There is some good information elsewhere on the web too. I found the Aplastic Anaemia and MDS International Foundation web site really helpful. They have an online learning section where you can listen to presentations from experts. http://www.aamds.org/about/MDS/types
Remember "cancer" is a word, not a sentence!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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