|
Thinking of you
Dear Jane,
My dad was dx this Oct 1 with MDS/Myleofibrosis. He is 77 yrs old.
Everyone here is so nice and encouraging. It is a frightful time because you hear things or reads articles and it scares you. I have read many positive stories on this site and others as well. Learn as much as you can, and ask questions. Don"t be afraid, you are your best advocate.I think it takes some time to process this information. It is a lot to grasp. Hugs to you tonight.You came to the right place. If you ever want to talk or need help just email me.
There is a lady on this site who has battled this dx for over 10 years. She is my ray of hope. It was her story that changed the way I see things.
There is a section where pt tell their stories. Her story is the first story.
My prayers are with you tonight.
Mary Schmitz
__________________
Mary, daughter / caregiver of Bob age 77; on Oct 1 2013 dx with MDS/MPN overlap +Trisomy. Jak2 at d< 5 blast. , and on March 1 2014 Dx with AITL non Hodgkin's Lymphoma.
Tx: decitabine/prednisone/Jakafi?
|