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Old Sun Dec 15, 2013, 12:30 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza

Hi Harry,
You know it can take 6 months or more for Vidaza to work - it is not common that the patient is responding after only one cycle. This means that you (or your doctor) don't know if the drug is working for your father yet.

No doctor who knows anything about MDS treatment would think of switching your father to Dacogen yet. Vidaza is a better drug for more MDS patients than Dacogen.

Good that the WBC are OK !

Your father perhaps needs platelet transfusions - it is very important with all kinds of supportive therapy when he is receiving Vidaza.

Even if he is the youngest one his siblings can be donors. To donor stem cells is like giving blood. Then his children like you could be donors and could be tested. Many patiens have unrelated donors from a register with donors from the whole world.

What kind of MDS has your father and what kind of chromosome aberration?
Kind regards
Birgitta-A
74 yo, dx MDS Interm-1 2006, chromosome aberration del12p + -X, supportive therapy until 2010. Positive results with Thalidomide + Prednisone 2010-2013. Now trying Revlimid.
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