Erica,
My son was diagnosed with VSAA in March 2011and began ATG/cyclosporin in April. He became transfusion independent around July but due to effects on kindneys had to have his Cyclosporin reduced and then returned to transfusion again. He has been back on transfusions about every 3 weeks since they dropped his dosage. For reasons I wont get into here, Trevor wont recieve a BMT. When I was in your place someone had responded to me to watch a video on
http://www.aamds.org/ regarding the success of supressent therapy vs BMT. After veiwing the video I was no longer convinced that a BMT was the only answer. Im not sure of which video, but the info on that site will help you tremendously. Hopefully that helps you in some way.