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Hi Teo,
How much difference do you see in ferritin values? I think many labs give diff results also.
Good for the weight gain with this disease, my mother could do with a few extra kgs, but she did not gain any weight with EPO. Is there any benefit showing with Danazol or is it too early to say?
Asunra, manufactured by Novartis, Switzerland is the chelation drug available here, which is same as exjade. 30 tabs of 400 mg cost is approx US$55. The starting dose is 20 mg/kg. You could send me a pm if you need more information.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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