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Old Tue Nov 27, 2007, 08:57 PM
Margie Margie is offline
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Join Date: Sep 2007
Location: Wylie, Texas
Posts: 42
MDS RA with Multilineal Dysplasia

I also have MDS RA with multilineal dysplasia. Don't panic yet. I was diagnosed three years ago during a routine physical and possibly had had the disorder at least a year before that. My counts - red, white and platelets have slowly gone down over the years. This year in March after trying Aranesp to no advantage, the doctor began packed red blood cell transfusions. I get 2 pints every 3-4 weeks. This seems to work for now.
You have what seems to me an unusually low platelet count at this point compared to your other counts. Mine is still in the 30-40 range after all this time. My white count ranges from 1.1 - 2.2. Based on what I have experienced, you will have time to take advantage of every treatment available and what may come in the future.
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