[Donna E]

My father had MDS and I was wondering if there is a database anywhere where we are collecting data on this illness. I used this site when my Dad was sick to get support and answers but I really wish we could be more proactive to find out what is causing this so we can prevent it . . .
Is anyone collecting data on MDS patients to see if there are any common links to look into?
I was just wondering if this exists . . .

Thanks -- Donna