The PNH Research and Support Foundation, which funds
research to find a cure and new treatments for paroxysmal nocturnal hemoglobinuria (PNH), has moved its website from
www.pnhfoundation.org to
pnh.aamds.org, now sharing the aamds.org domain with its strategic partner the
Aplastic Anemia & MDS International Foundation. They also share the AA&MDSIF's
Peer Support Network.
In additional to funding research, the PNH Research and Support Foundation has provided needy PNH patients with funding for disease-related expenses not covered by insurance, including
seeing a specialist.
You can contact the PNH Research and Support Foundation at 888-582-9993 or
info@pnhfoundation.org.