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Wife of deceased retired Navy MDS patient
I just happened on this site as I was trying to research how many Navy veterans had MDS and were in the nuclear field. We spent four years of our lives living with and fighting MDS. My husband had a mini stem cell transplant at Seattle Cancer Care Alliance with an unrelated donor. He passed away six years ago from complications of that transplant. The disease was totally eradicated. We spent four months in Seattle and would be happy to discuss the experience with anyone who is considering a bone marrow transplant to cure this horrendous disease. In addition to the MDS he also had myeleofibrosis. He was a nuclear technician in the Navy. I'm sure he's not alone in getting this disease. My heart goes out to those of you that are fighting for your life. If I can be any assistance to you please feel free to contact me. Linda
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