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Ah Chirley, the Professor may be a smart man, but it seems like all he did was to give you bad news! I am glad that you have had such good response to the copper supplementation so far, in terms of resolving the MDS symptoms, and hope the neurological issues continue to improve as well.
The report from Dr. Paquette at UCLA arrived Friday. Neither of the two University hospital pathologists who looked at Bruce's bone marrow slides saw a clear cut case of MDS, however, Dr. Paquette thinks that's what is going on. A diagnosis by exclusion.
Dr. Paquette nixed the copper deficiency as being an important factor contributing to anemia. And the local hematologist talked to a doctor from the Mayo Clinic, who said Bruce didn't fit the profile for someone with copper deficiency anemia.
As the IV supplementation has not normalized Bruce's copper or ceruloplasmin levels, Bruce is leaning towards stopping the supplementation. He is going to continue transfusions, and do a trial of Exjade.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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