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Old Fri Jul 9, 2010, 12:38 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Thanks Neil,

Those are some great ideas for me follow-up on. I think we are spoiled. Before John started treatment, his case went before the board to get approval to treat him and they basically gave the go ahead to treat with no restrictions. I will never forget when they called to tell me treatment at Hopkins was approved. The agent basically said they usually do for these fatal diseases. Then she realized that she used the word "fatal" and was so apologetic. So we never were denied a procedure, med or doctor. And, the company I retired from has a very comprehensive plan.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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