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Hi SheWhoKnits,
I was originally diagnosed with MDS RCMD, but that was later changed to an AA/MDS overlap diagnosis. When my disease was active, I had continual low grade fevers and the nightly drenching sweats. Once my marrow started recovering after ATG, the sweats and fever disappeared. I will still get them occasionally when fighting a virus.
Does your MDS RCMD include chromosone abnormalities or just dysplasia? I ask because of your young age. If you have no chromosone abnormalities, have you been considered for immune suppressive therapy?
Best wishes!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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