Thread: MDS and fever
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Old Mon May 2, 2011, 01:27 PM
SheWhoKnits SheWhoKnits is offline
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Join Date: Dec 2010
Location: Wichita, KS
Posts: 5
Cool Night Sweats are Better

Instead of Vidaza I received dacogen as my hem/onc decided it works faster if anything is going to work at all. Four cycles later and I'm worse off than before so we discontinued it. I didn't have any abnormalities show up in BMBs, just dysplasia. Since being on the dacogen the night sweats have been greatly reduced, just a couple times a month! However, the fevers are persistent almost nightly. They do seem worse as my hemo drops. I figure it's caused by my body working overtime to try and crank out blood, but who knows? I'm still getting weekly procrit shots but they haven't rendered any visible improvements. My transfusion dependence has gone from once every 4 weeks to once every 2 weeks or even a few days less. I am going to KC tomorrow for a new BMB to see where things are. Until I qualify for a SCT I will be on supportive care (and I guess procrit).
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female dx MDS RCMD August 2010. Now 48 years old. trans bi-weekly, procrit weekly, dacogen 4 cycles failed
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