Hi every one I am new to forum. I was diagnosed with MDS 6/11/11 after BMB. I am a 62 year old male .
I battled non-Hodgkin’s lymphoma for ten years with lots of chemo after 4 recurrences. I have been in remission from the lymphoma for ten years and still in remission.
My oncologist-hematologist says i am low grade with <1% blast and no chromosome damage. Red blood cells in normal range, palettes are 82 and white blood cells 2.8. Most recent blood test 11/02/11) shows numbers are the same. Because of possible insurance issues I have not gone to see a specialist in MDS yet. My doctor has conferenced with a MDS doctor at Cleveland Clinic and he recommends wait and see at this time. A question I bought up to my doctor at most recent visit was if I had novo or treatment acquired MDS. He believes I may not have t-MDS because there is no chromosome damage and the next opportunity he has to conference with MDS specialist he will ask about the no chromosome damage. I am not scheduled to see doctor for a couple of more months . Would like to hear from any body who knows if no chromosome damage means I do not have treatment related MDS. I would also be interested in any other MDS patients especially those with t-mds, as a t-MDS prognosis does sound rather poor .