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my experience with dacogen
Started on dacogen right after my diagnosis 3 1/2 years ago. After 3 months of counts jumping up and down and all around (and a few blood transfusions, added platelets), as a nurse put it "after enough of the drug built up in my body", I've been normal since. Side effects are my white count dropping a bit after treatments and then jump back up to "almost" normal during my time off the drug. Other side effects for me some constipation and a day or so after treatments I feel a little "washed out" and have to take a nap (not so bad). Other than that I feel 100%! Have had only 1 infection (diverticulitis) during this period!
Take care and the best to you! 
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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