My Husband was initially diagnoised with AML but after a second bone marrow biopsy he was found to have MDS in the intermediate stages, They are telling us that without a stem cell transplant that he may have 2 to 3 yrs of life left:
He will be going through 4 cycles of Vidaza within the month to see how he responds to that before the transplant is scheduled. He had 5 brothers tested but unfortunately none were a match. We will now go through the National Registry, the bad thing about that is that the rejection factor is higher with an unrelated donor.I wonder if the Vidaza could maybe deter the transplant? It was good news that the disease had not progressed to AML but he is basically being treated the same way.I had bought a supplemental cancer policy but was denied due to the fact that their definiton of cancer included malignant cells or tumors and MDS does not fall in that catagory
Any feed back would be greatly appreciated Thanks Donna