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Old Tue Jul 31, 2007, 09:50 AM
Jbsx19 Jbsx19 is offline
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Join Date: Jul 2007
Location: Florida
Posts: 29
Info for parents of Blood/Bone Marrow patients

Hi all,

Just wanted to let you know that there are places you can go to meet up with other parents and kids can meet other kids with the same diseases. Both Victory Junction camp (run by Nascar's Kyle Petty)and Camp Boggy Creek (run by Paul Newman) have special weeks dedicated to Blood/Bone Marrow issues so that the kids and parents can meet each other. Visit their websites for more information. Camp Boggy Creek is here in Florida and I believe Victory Junction is in North Carolina. WWW.boggycreek.org and www.victoryjunction.org .
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Judi 46yoa VSAA diagnosed May 2003 ATG/Cyclosporine/mycophenolate treatment complete remission ukn cause. I believe caused by stress while on an antibiotic or an allergic reaction to the antibiotic. I also had ITP about 20 years prior.
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