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Old Mon Sep 12, 2011, 09:49 AM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
My husband had his first bone marrow biopsy in 2009 without sedation. NEVER AGAIN, he says. Now he tells them weeks in advance that he wants the sedation. He has a very high pain threshold, so I know it must have been really bad. Of course, I think it makes a difference where you have it. The first one he had was attempted by a PA from his first oncologist's office. I don't think she had done that many and seemed very upset that she had failed to get the marrow in his hospital room. They had to take him downstairs and sedate him before they were able to get it.
I think places like M. D. Anderson and other places that specialize in bone marrow failure diseases have people that that is all they do all day long and they are probably able to do it with minimum discomfort to the patient.
But my husband still says he will never have another one without sedation.
It must have been bad!
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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