Hi Linda,
Good with an appointment for Moffitt
! If you look at clin trials gov for Moffitt MDS you will find many studies. If you continue to studies recruiting patients you will find 12 trials and among them a study of Promacta for high risk MDS patients:
http://clinicaltrials.gov/ct2/show/N...cr=Open&rank=2,
Hopefully Al will be able to participate in that trial!
Since I have been taking B12 since dx my B12 is also off the chart - more than 1100. I don't know how high my folate level is. You know we should not take folic acid if the level is very high because folic acid is DNA methylating - has opposit effect than for example Vidaza that decreases DNA methylation.
Kind regards
Birgitta-A