Hello everyone! I'm new to this board & just read this thred. My husband was told he had some kind of Bone Marrow disease right after Thanksgiving. He went right into the hospital for a week. They had a hard time deciding exactly what he had but kept telling him he looked so good! Well, we finally visited with a Transplant specialist who informed him it is definitely MDS. They put him on Vidaza right away & he just finished his third round of subcutaneous shots. He's had plenty of his share of transfusions so far. Last week it was just platelets. They still keep saying he looks so good & they're surprised he doesn't have any fevers.
I don't know what to think about all this! Must I prepare myself to lose the love of my life? We are still anxiously waiting to hear if his sister is a marrow match but know the chances aren't great! What others go through with a transplant is pretty scary too!
Has anyone been cured of this - totally?! Does it come back? I know someone who actually went into remission with Vidaza but she's on Nupogen to keep her white cells up.
I guess I just need help understanding what to expect
Beth E.