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Old Sun Jun 12, 2011, 07:11 AM
celebrations celebrations is offline
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Join Date: Jun 2007
Posts: 34
high liver counts after years of MDS?

Hi,
after 5,5 years of MDS my liver counts are elevated (not yet that much but elevated) and so is my glucosis count (is that the right word for it? When it will be to high you'll have diabetis).
I get red blood transfusions all 14 - 18 days (about 105 are done), no further medication, ferritin level around 1000, will restart Exjade.
It can not be from the Exjade because I have paused fpr 8 months.

ANY IDEAS ? ANY EXPERIENCE?

I am concerned. I cannot afford any organ damage, because somewhere in the future I will have to have a SCT.

Bergit
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