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Hi Birgitta, Interesting what you said about the pancreas, I didn't know it could be affected by iron overload. It makes me wonder if the raised amylase/lipase I had with my Exjade reaction was actually from the Exjade. It is the only time I have ever had those enzymes tested. I would have thought they would have redone them when I stopped the Exjade but they haven't.
I might ask for them to be done with my weekly copper tomorrow. Thanks again for the information.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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