Hi there,
My name is Brian and I went through a very similar thing a year and a half ago. At first the doctors believed it was ITP, Evans Syndrome, MDS, and finally settled on Aplastic Anemia. It sounds like you are in San Diego which is where I live with my wife (who is a nurse). If you have any questions at all please let me know.
I am so sorry that your family is going through this. I hope that you find relief soon for him!
Brian
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26m Mystery liver failure 6/11 treated with prednisone. Falling counts, Rituxan attempted for Evans syndrome 11/11. Tx dependent and SAA dx 12/11. hATG 2/12, no response. MUD BMT 5/6/12. Living life!
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