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Old Tue Apr 8, 2014, 06:23 PM
Caregive Caregive is offline
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Join Date: Nov 2013
Location: USA
Posts: 61
I live in WA also and went to Fred Hutch in Seattle, Seattle Cancer Care Alliance actually, which is a coordinating effort of U of WA, Fred Hutch and a children's hospital. My husband saw Dr. Deeg who is I guess a top specialist in MDS. Your doctor has to refer you there I think. Do ask. We did.

Also, AAMDS.org is having a conference for patients and families on June 21 for those with MDS and other blood diseases. Go to the AAMDS site and you can sign up for free.

What part of WA do you live in? I wish you well.
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