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Old Wed Dec 18, 2013, 12:16 AM
kyis kyis is offline
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Join Date: Jun 2013
Location: Marin, California
Posts: 56
More confused AA MDS Hypocellular

Not even sure which I have anymore. My doctors say MDS.
Main doctor says get the transplant when the time comes.
2nd opinion says get ATG cyclosporine if my blasts can stay under 10%.
I don't have any chromosome problems apparently.
What else should I be looking at? I get BMB every 4 months or so. Those are fun. Still working 40+ hours a week and feel fine for the most part, though I'm a little concerned about wbc at .8.
Blasts range around 4 to 9% over the last year since diagnosis.
Now they are talking about starting me on vidaza.
Anyone any thoughts would be great.
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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