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Old Thu Sep 27, 2007, 01:15 AM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Consider volunteering for the AA&MDSIF

Good for you for being a blood donor! Another way you can help is to consider joining the AA&MDSIF's Global Support Network. The Network consists of patients and family members who are willing to share their experiences with bone marrow failure diseases with other patients and families in need of support and hope. I've been a member of the Network for several years and talk regularly by phone and email with people who have contacted the Foundation hoping to speak to someone with "real life" experiences. People are often grateful just to talk with someone who really understands what AA, MDS, or PNH is like.

Thanks for sharing.
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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