Thread: PNH
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Old Fri Jan 4, 2013, 11:57 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Heather (and Ronald),

Your points are so true. A life-threatening illness gives you an entirely new perspective, helping you realize what's important and what's not. It certainly happened to my wife and me.

PNH and other marrow failure diseases can put a strain on marriages, because you have to fight not to fall completely into new "patient" and "caregiver" roles. These diseases usually can't be vanquished quickly so you have to remember you are husband and wife first. At the same time it makes you a team as you've never been before. People talk about soldiers becoming brothers in the trenches, and the same is true for families who band together to battle an illness.

You're right that Jackie has a great blog, especially because it's mostly about life, not a disease. Great photos too!
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