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Promacta advise? Ok for PNH?
I saw a post by Sally c that mentioned promacta (great post thank you) and when I looked into it a little it sounded like something to ask my husbands DR about as his last labs reported
Plateletts 14
Hgb5.5
Wbc3.6
It seemed back and forth about being ok for PNH but my real question is how was it for anyone that took it? Benefits over risks? What risks are there?
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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