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I don't have anything further to add, but I just want to say hello since I saw you're in State College! I'm a Penn State grad, as are my mom and brother, and growing up in Central PA meant we were always travelling up there for various tailgating and football games.
I noticed you didn't say where your daughter is based - it might be worth sending her BMB results to an expert in AA/MDS to get a second opinion. Even among haematologists, these are very rare diseases so it's worth getting expert eyes on them. Is there an MDS Centre of Excellence near her?
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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