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Old Mon Jan 10, 2011, 09:28 PM
thesubmitter thesubmitter is offline
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Join Date: Jan 2011
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16yr old Cousin Diagnosed with AA

Hi,

My 16yr old cousin was diagnosed with AA a couple of days ago and I was hoping I could benefit from your collective experience.

His sister wasn't a match and so the doctors are proposing an ATG treatment.

A few specific questions:
1. Are there any specialists in the L.A. area to consider (or anywhere else really). He is currently at LA children's hospital.
2. Is care better in Canada (he has dual citizenship)?
3. Is it normal to go from considering familal BMT straight to ATG treatment, what about National Bone Marrowdata bases or cousins (there are about 10 cousins)
4. Any things I should get the family to investigate or questions to ask.
5. Could this be a misdiagnosis.

I'd appreciate any advice, ideas or help you can all offer that I might share with the family.

To all of you who are going through this terrible disease, I wish you the best in your fight, you are brave courageous people.

Thanks,
Amir
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