[marc]

Hi Lee,
I'm glad you are going to see a PNH specialist.

I was diagnosed two years ago. I'm on Soliris, Procrit, Folic acid and Exjade. Exjade removes the excess iron that is introduced into the blood thru a transfusion. Have not had too much nausea but certainly have had some in the past. Most of it due to certain meds.

As for demanding treatments, always stand your ground! You are your own best advocate. No one else is going to fight as hard for you. If you feel something isn't right, get another doctor.

Anyway, got to run, but have a great Thanksgiving!
Marc