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The trial at Hopkins that Karen went through was specific to reducing GVHD by treating with high dose cytoxan for two days right after the transplant. Do you think that maybe doing hycy now could be an option to explore?
I know it's a long shot but may be worth exploring.
Hang in there!!!!
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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