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Old Sat Dec 8, 2012, 05:36 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I'm going to cut the steps of logic as to why I did the following Google search "LGL + scleroderma" but here is one of the results I found. Do not panic at the name. Dr. M tells me it is not properly named and is not as bad as it sounds.

http://moffittcancercenter.com/moffi.../article3.html

PRCA is common with LGL as are many autoimmune diseases. Dr. Maciejewski has done a lot of research regarding T-Cell mutations in LGL. He told me I have the defect he has identified, even though I don't have LGL. I know that doctors at NIH are looking at LGL relating to all the diseases discussed on these boards. When they do venn graphs of how these diseases relate, they have LGL as part of them, but represented with dashed lines.

These findings may not be familiar to all hematologists because LGL is also rare. You might want to remind yours of the relationships.

Both Dr. M and my local doctor have told me the treatment for LGL and PRCA is the same.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/

Last edited by triumphe64 : Sun Dec 9, 2012 at 03:35 PM.
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