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Old Mon Jun 16, 2014, 03:22 PM
Sue H. Sue H. is offline
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Join Date: Dec 2013
Location: Switzerland
Posts: 19
What an inspiring message Kevin. Thank you for sharing this.
My husband (somewhat older than you - 57 years old) was also diagnosed with severe AA 2 months after you and went through the same treatment regime. He also had no significant response at the time. Now 2 years on, having taken Eltrombopag for the past one and a half years, his counts have improved significantly and are also creeping towards normal. The professor at our University Hospital (we live in Switzerland) wants to start reducing Eltrombopag soon. Fingers firmly crossed that counts stay stable.
Was wondering - did you ever have any other treatment (after initial ATG, Ciclosporin) or do anything in particular to encourage counts rising or did it just happen?
This is such a mysterious and baffling disease - which is why stories like yours are so encouraging to hear. Really makes me wonder what it is which makes a difference and promotes healing.
Hope you continue to make great progress. Wishing you all the very best.
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